How Childhood Jobs Prepared Me for Success as an Autistic Adult

Anita outsideBy Anita Lesko, BSN, RN, MS, CRNA 

I have the good fortune to be a friend of Dr. Temple Grandin. We have a lot in common. We are both autistic, and we share a very similar youth that played a big factor in our adult life. We both started having jobs at a very early age. Temple often talks about her early days, when her job was to greet guests at the door for her mom’s dinner party, and take their coats to hang up. Yes, it was a job. She was given a responsibility to carry out.

Among her numerous other childhood jobs was the one I, too, did for many years — mucking out horse stalls. In conversations with Temple on the phone, we’ve talked about those days of our teenage years spent shoveling out one stall after another. We both love horses and being around them. It was peaceful and it was also a form of therapy. In essence, it was our occupational therapy.

All the childhood jobs we did prepared us for the day when we’d start our careers. We were used to working, showing up on time, following orders from a boss, figuring out how to get a job done. It was just a regular part of our life. So, when the day came to embark into our careers, we really didn’t have to transition into anything. We were already there.

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When A Child With Autism Struggles Understanding Sarcasm

kerryBy Kerry Magro, Self-Advocate, National Speaker, and Author

Someone once said that ‘sarcasm is a metric for potential.’ Often at times though this is one of the hardest struggles for those with autism growing up.

A lack of sarcasm is often one of the most common characteristics of struggling with an autism diagnosis along with things such as social and communication issues, difficulties reading body language, using different tones in their voices and many more.

I remember as a young boy on the spectrum in computer class and hearing a joke that I didn’t find funny. It was a sarcastic joke by our teacher and while everyone else in the class laughed I was there completely blank. A girl looked at me after the joke had stopped like I had three heads.

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ASD: On the Wrong Side of the Law?

IMG_3896By Carol S. Weinman, Esq., Autism Legal Specialist

What better time to initiate a conversation about encounters with the criminal justice system than during Autism Awareness Month in April? While it may be well known that many individuals with Autism Spectrum Disorder (ASD) are victimized and bullied, it often comes as a surprise to learn that individuals with ASD are increasingly finding themselves detained in the back of a police wagon or seated in a courtroom at the defendant’s table. That’s why the demand for education and awareness on this timely topic is greater than ever before.

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Is Your Home Influenced by Down Syndrome (Trisomey 21)?

 

Elayne_And_Heidi_In_White_Touched-up[1]By Elayne Pearson, CAS, Speaker/Author/Disability Advocate

World Down Syndrome Day, March 21st – was created for public awareness, promoting fundamental freedoms, and encouraging inclusion for individuals with Down syndrome.

Many know Down syndrome is a genetically-based condition resulting in a range of mental impairments and developmental delays. It’s official term, Trisomy 21, is caused by an unusual division of the two 21st chromosomes into three. Hence, the term Tri-somy 21.

So, March is the third month, and the 21st day designates World Down Syndrome day. Get it?  Trisomy 21 on 3/21. Clever, huh?

Scientists hypothesize the chromosomal change happens at conception, and currently, there is no known cure for Down syndrome. I could go on with boring scientific stuff, but I won’t. But believe me, life with a child with Down syndrome is anything but boring! We testify of that. Having Heidi in our family has been a joyous adventure for almost 30 years.

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15 Behavior Strategies for Autistic Children

Written by Rachel Wise (article republished with permission)

In this article you will find 15 supportive behavior strategies for children on the autism spectrum (some strategies can be used with adults as well). Many of the strategies can also be used to help children without autism who have challenging behaviors.When caring for or working with a child with autism, a parent, teacher, or other adult may become frustrated with the child’s behavior. Behaviors can come on suddenly, last for hours, be hard to control, or make the adult scared or embarrassed.

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Meet Dr. Bruce Wexler, International Symposium on Cognitive Research & Disabilities Speaker

bruce-wexlerDr. Bruce E. Wexler is a Professor at Yale University. He graduated Magna Cum Laude from Harvard College, received his MD from Albert Einstein College of Medicine, studied psychiatry at Anna Freud’s Hampstead Clinic, neurology at Queen’s Square Institute of Neurology, and psychiatry at Yale. Author of over 125 scientific articles, Professor Wexler is a world leader in harnessing neuroplasticity to improve cognition through brain exercises. He and colleagues developed the first program that integrates computerized brain exercises and physical exercises to improve executive function in young children, a program in use by thousands of children in schools across the U.S. Dr. Wexler and colleagues have also developed programs that are effective treatments for ADHD and geriatric depression. Continue Reading →

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Caring for the Caregiver

 By Taveesha Guyton, Social Worker

Being a caregiver is hard. The scheduling of medical, dental, school and after school activities and appointments is daunting. Let us not forget meal prep and clean up followed by the constant cleaning after little people who leave toys, and food everywhere. Yes, being a caregiver is difficult, and it is not easy when one is the caregiver of a child with Special Needs such as Intellectually Disabilities or Autism.   Is there care for the caregiver and if so, what does care include? Here are some helpful tips to help caregivers.

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Is Your Special-Needs Halloween a Trick or a Treat?

Elayne Pearson“Hand in Hand with Elayne”

By Elayne Pearson, Special Needs Preparedness Specialist, CAS

Most children love Halloween, but it can be tricky―and downright scary for some. This holiday can be problematic for people with sensory issues―from the intense sights, sounds, smells, tastes, and textures bombarding them each October.  If you have a child affected by a special-need, especially autism, Halloween can be a complex time. It can conjure a cauldron of concerns―resulting in amplified anxiety, increased impulsivity, deeper withdrawal, and even insomnia and nightmares. Yikes!

Over the many years with Heidi Ann (our little pumpkin with Down syndrome and autism) I learned several strategies to make this crazy/creepy holiday not only a happier one for her, but a sane one for us. My acronym “HALLOWEEN” offers options, cautions, and examples to help set a better tone. Continue Reading →

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IBCCES’ International Symposium on Cognitive Research & Disabilities to Feature Top Experts & Educational Leaders

Healthcare and education professionals are invited to participate in the 1st Annual International Symposium on Cognitive Research & Disabilities, which is set to take place February 13-14, 2017 at the World Golf Village in St. Augustine, Florida. The symposium is designed to equip professionals with the tools they need to increase the quality of care and improve outcomes for both students and patients with cognitive and developmental disabilities. Top cognitive research experts and educational leaders will conduct TED Talk formatted panel discussions on topics relating to healthcare and education for this 1.5 day event hosted by the International Board of Credentialing and Continuing Education Standards (IBCCES).

“The latest research tells us that 94% of the population will either be personally affected by or have an immediate family member affected by one or more of the top cognitive disorders sometime in the next 20 years,” said Myron Pincomb, International Board of Credentialing and Continuing Education Standards (IBCCES) Board Chairman. “No other profession is impacted by these findings more than our educators and health care professionals.”
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Using Augmentative and Alternative Communication (AAC) Presume Competence for ALL Individuals

By: Sheryl Rosin Ph.D.,CCC-SLP, Owner/Director of Palm Beach Speech-Language Specialists, CAS and Trainer for IBCCES, Adjunct Professor, Nova Southeastern University

domMeet Dominik

I have been working with individuals with autism for 20 years and have met many interesting and exciting people along the way. In this blog, I have someone that I would like to introduce to you that I believe is an extraordinary person. His name is Dominik and he is 14-years-old. Dominik has diagnoses of autism and apraxia and is essentially non-verbal with his spoken language, but is definitely NOT non-verbal when using other means to communicate aside from the spoken word. Upon meeting Dominik, you may assume that he has limited communication skills, but since we presume competence when working with our clients, I learned that the opposite it true. Dominik has a passion for writing and using language to communicate his vast interests. One of the ways he has learned to do this is through an augmentative communication application called “Speak for Yourself (SFY).” SFY runs as a communication device on the iPad and uses synthetic speech to aid individuals with their expressive language output. It is based on core vocabulary and allows the person to communicate using generative language. Dominik has learned to use the augmentative communication system to express his wants and needs, feelings, hold conversations with others, and to communicate his expansive knowledge and interests in a variety of topics. Our conversations using AAC have ranged from the etiology of autism to future careers. Dominik thinks that vaccines “are the culprit of autism” and wants to be “a neurologist” when he is older. When Dominik communicates using AAC, he let us into his amazing world of thought. Not only does he use SFY; he can type on a computer keyboard, write with facilitated assistance, and is now starting to use verbal speech as AAC has been a bridge to developing spoken language for him.

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